Health Utilities and Acceptable States in Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) – Preliminary data (1827)
Meg Mendoza, Hans Katzberg, Vera Bril, Carolina Barnett Tapia
Abstract
Meg Mendoza, Hans Katzberg, Vera Bril, Carolina Barnett Tapia
Abstract
Current guidelines for assessing CIDP patients and their response to treatment are centered on expert definitions of good outcomes. While there are several CIDP patient-reported measures, we currently do not have a patient-anchored definition of what constitutes a “good” outcome. Therefore, we do not have a clear threshold when to escalate or stop CIDP treatment from the patient perspective.
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Current guidelines for assessing CIDP patients and their response to treatment are centered on expert definitions of good outcomes. While there are several CIDP patient-reported measures, we currently do not have a patient-anchored definition of what constitutes a “good” outcome. Therefore, we do not have a clear threshold when to escalate or stop CIDP treatment from the patient perspective.
Key concepts: Chronic inflammatory demyelinating polyneuropathy, Medicine, Polyneuropathy, Polyradiculoneuropathy, Pediatrics, Immunology, Guillain-Barre syndrome, Internal medicine