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2022•International Journal of Rare Diseases & DisordersOpen access

The Rare Disease Advisory Council Expands its Reach into West Virginia Appalachia: A Call to Action

Falah Nadia

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Abstract

Patients with rare diseases in rural Appalachia face an additional hurdle in getting care. West Virginia is the only state wholly within the Appalachian region, which is noted for having some of the nation's worst health disparities.

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What this paper is about

Patients with rare diseases in rural Appalachia face an additional hurdle in getting care. West Virginia is the only state wholly within the Appalachian region, which is noted for having some of the nation's worst health disparities.

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Available abstract

Patients with rare diseases in rural Appalachia face an additional hurdle in getting care. West Virginia is the only state wholly within the Appalachian region, which is noted for having some of the nation's worst health disparities.

Key concepts: Appalachia, West virginia, Appalachian Region, Call to action, State (computer science), Face (sociological concept), Political science, Public administration

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