Rights and research: an examination of research under New Zealand's Code of Health and Disability Services Consumers' Rights.
Lydia Wadsworth
Abstract
Lydia Wadsworth
Abstract
New Zealand's Code of Health and Disability Services Consumers'Rights came into force in 1996 after Judge Silva Cartwright's Cervical Cancer Inquiry concluded that a research study into the course of cervical cancer had taken place at National Women's Hospital without the participants' knowledge or consent. The Code creates rights in respect of the provision of health and disability services which explicitly extend to research. However, in the absence of a statutory definition of "research", its meaning and the application of the Code to research in New Zealand are unclear. This article seeks to identify the gaps and find a solution.
A significance statement is not available in the OpenAlex record.
A contribution statement is not available in the OpenAlex record.
Method details are not available in the OpenAlex metadata.
Findings are not separately available in the OpenAlex metadata.
Limitations are not available in the OpenAlex metadata.
Application details are not available in the OpenAlex metadata.
New Zealand's Code of Health and Disability Services Consumers'Rights came into force in 1996 after Judge Silva Cartwright's Cervical Cancer Inquiry concluded that a research study into the course of cervical cancer had taken place at National Women's Hospital without the participants' knowledge or consent. The Code creates rights in respect of the provision of health and disability services which explicitly extend to research. However, in the absence of a statutory definition of "research", its meaning and the application of the Code to research in New Zealand are unclear. This article seeks to identify the gaps and find a solution.
Key concepts: Statutory law, Meaning (existential), Code (set theory), Public relations, Nursing, Law, Political science, Medicine