2013PubMedRequires access

Rights and research: an examination of research under New Zealand's Code of Health and Disability Services Consumers' Rights.

Lydia Wadsworth

Open publisher page 0 citations

Abstract

New Zealand's Code of Health and Disability Services Consumers'Rights came into force in 1996 after Judge Silva Cartwright's Cervical Cancer Inquiry concluded that a research study into the course of cervical cancer had taken place at National Women's Hospital without the participants' knowledge or consent. The Code creates rights in respect of the provision of health and disability services which explicitly extend to research. However, in the absence of a statutory definition of "research", its meaning and the application of the Code to research in New Zealand are unclear. This article seeks to identify the gaps and find a solution.

About this research paper

What this paper is about

New Zealand's Code of Health and Disability Services Consumers'Rights came into force in 1996 after Judge Silva Cartwright's Cervical Cancer Inquiry concluded that a research study into the course of cervical cancer had taken place at National Women's Hospital without the participants' knowledge or consent. The Code creates rights in respect of the provision of health and disability services which explicitly extend to research. However, in the absence of a statutory definition of "research", its meaning and the application of the Code to research in New Zealand are unclear. This article seeks to identify the gaps and find a solution.

Why it matters

A significance statement is not available in the OpenAlex record.

Key contribution

A contribution statement is not available in the OpenAlex record.

Method / approach

Method details are not available in the OpenAlex metadata.

Main findings

Findings are not separately available in the OpenAlex metadata.

Limitations

Limitations are not available in the OpenAlex metadata.

Applications

Application details are not available in the OpenAlex metadata.

Available abstract

New Zealand's Code of Health and Disability Services Consumers'Rights came into force in 1996 after Judge Silva Cartwright's Cervical Cancer Inquiry concluded that a research study into the course of cervical cancer had taken place at National Women's Hospital without the participants' knowledge or consent. The Code creates rights in respect of the provision of health and disability services which explicitly extend to research. However, in the absence of a statutory definition of "research", its meaning and the application of the Code to research in New Zealand are unclear. This article seeks to identify the gaps and find a solution.

Key concepts: Statutory law, Meaning (existential), Code (set theory), Public relations, Nursing, Law, Political science, Medicine

Related papers

Back to paper searchBrowse research topicsOriginal source
Rights and research: an examination of research under New Zealand's Code of Health and Disability Services Consumers' Rights. — Research Paper | ScholarLens