The role of the amyotrophic lateral sclerosis and motor neurone disease community in health-care resourcing.

The Amyotrophic Lateral Sclerosis and Motor Neurone Disease (ALS/MND) Associations operate in the same financially constrained environment as everyone else. Increasing competition for limited health-care resources means that we are having to become better at competing for them on behalf of people affected by ALS/MND. This paper highlights the problems associated with making a case for ALS/MND, explores a range of method available to us, and illustrates using examples the recent activities undertaken by the UK MND Association.