2009The AMA Journal of EthicOpen access

Autonomy and Exception from Informed-Consent Research

C. A. Macardle, Rachel Stanley

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Abstract

The well-recorded historical abuse of biomedical research subjects around the world has led to a lasting distrust of the research system [1]. For this reason, it is usually considered obligatory to acquire informed consent for research studies. The international research community strongly condemns any disregard for proper consenting processes [1]. Because of this requirement, vital emergency medicine (EM) research is hampered by urgent health needs that render patients unable to consent for studies. This has led to a relative dearth of research for emergency treatments.

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The well-recorded historical abuse of biomedical research subjects around the world has led to a lasting distrust of the research system [1]. For this reason, it is usually considered obligatory to acquire informed consent for research studies. The international research community strongly condemns any disregard for proper consenting processes [1]. Because of this requirement, vital emergency medicine (EM) research is hampered by urgent health needs that render patients unable to consent for studies. This has led to a relative dearth of research for emergency treatments.

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Available abstract

The well-recorded historical abuse of biomedical research subjects around the world has led to a lasting distrust of the research system [1]. For this reason, it is usually considered obligatory to acquire informed consent for research studies. The international research community strongly condemns any disregard for proper consenting processes [1]. Because of this requirement, vital emergency medicine (EM) research is hampered by urgent health needs that render patients unable to consent for studies. This has led to a relative dearth of research for emergency treatments.

Key concepts: Distrust, Informed consent, Autonomy, Research ethics, Medicine, Alternative medicine, Psychology, Political science

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