2012•Alzheimer s & DementiaRequires access

P2‐332: Impact of dementia caregiving in caregiver's life

Anita de Paula Eduardo Garavello, Regina Miksian Magaldi, Cláudia Kimie Suemoto, Lilian Schafirovits Morillo, Wilson Jacob Filho

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Abstract

Seventy three caregivers were interviewed, predominantly children (68%), with 57 (±12) years ago and family income up to 1320 dollars (66%). Only 26% had formal caregiver assistance, devoting an average of 19 hours of daily care. Most of them did not practice physical activity (83%), did not work (71%) and did not participate in group activities (77%). A significant part of them stopped exercising (36%) and working (42%) for failing to reconcile tasks with caregiving. Only 2.7% had support of any kind of caregivers groups. Leisure activities were significantly affected, with reduced frequency in 71%. Participation in religious ceremonies comprised 45% of the caregivers, although 58% of these had reduced the frequency. Caregivers had significant changes in their lives by changing their social role, leisure activities and exercise. Lack of support for this segment of the population was noticed, highlighting the needs for greater participation of the State and civil society in caring for dependents and support for caregivers.

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What this paper is about

Seventy three caregivers were interviewed, predominantly children (68%), with 57 (±12) years ago and family income up to 1320 dollars (66%). Only 26% had formal caregiver assistance, devoting an average of 19 hours of daily care. Most of them did not practice physical activity (83%), did not work (71%) and did not participate in group activities (77%). A significant part of them stopped exercising (36%) and working (42%) for failing to reconcile tasks with caregiving. Only 2.7% had support of any kind of caregivers groups. Leisure activities were significantly affected, with reduced frequency in 71%. Participation in religious ceremonies comprised 45% of the caregivers, although 58% of these had reduced the frequency. Caregivers had significant changes in their lives by changing their social role, leisure activities and exercise. Lack of support for this segment of the population was noticed, highlighting the needs for greater participation of the State and civil society in caring for dependents and support for caregivers.

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Available abstract

Seventy three caregivers were interviewed, predominantly children (68%), with 57 (±12) years ago and family income up to 1320 dollars (66%). Only 26% had formal caregiver assistance, devoting an average of 19 hours of daily care. Most of them did not practice physical activity (83%), did not work (71%) and did not participate in group activities (77%). A significant part of them stopped exercising (36%) and working (42%) for failing to reconcile tasks with caregiving. Only 2.7% had support of any kind of caregivers groups. Leisure activities were significantly affected, with reduced frequency in 71%. Participation in religious ceremonies comprised 45% of the caregivers, although 58% of these had reduced the frequency. Caregivers had significant changes in their lives by changing their social role, leisure activities and exercise. Lack of support for this segment of the population was noticed, highlighting the needs for greater participation of the State and civil society in caring for dependents and support for caregivers.

Key concepts: Dementia, Gerontology, Population, Family caregivers, Psychology, Activities of daily living, Social support, Medicine

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