2015•Lara D. VeekenOpen access

276. Multicentre Audit of Disease Activity Assessment in Juvenile Idiopathic Arthritis: Juvenile Idiopathic Arthritis Topic Specific Group

Flora McErlane, Gillian M. Armitt, Andrew Paul Smith, Mark Friswell, Helen Foster, Wendy Thomson

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Abstract

Background: The assessment of disease activity is a key outcome in JIA, of interest to clinicians, researchers and commissioners. A standardized measure of disease activity would allow comparison between centres and clinical trial results, and enable outcome-based commissioning of services. However, disease activity is difficult to define and measure in this heterogeneous, multidimensional group of conditions with no national consensus. Little is known about the collection of disease activity-related data in the UK or the feasibility of disease activity assessment tools in routine clinical practice. This audit of current practice aims to benchmark assessment and documentation of disease activity across the UK. It will inform ongoing work towards deriving consensus around a standardized measure of disease activity for JIA. Methods: A literature review of disease activity assessment tools informed an initial consultation process with the JIA Topic Specific Group. A range of disease activity assessment tools was identified for inclusion in the audit. 14 UK Paediatric Rheumatology centres were invited to participate. The audit tool included a retrospective case notes review of 15 patients using a pre-tested proforma derived from the consultation process, and a more detailed centre review.

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Background: The assessment of disease activity is a key outcome in JIA, of interest to clinicians, researchers and commissioners. A standardized measure of disease activity would allow comparison between centres and clinical trial results, and enable outcome-based commissioning of services. However, disease activity is difficult to define and measure in this heterogeneous, multidimensional group of conditions with no national consensus. Little is known about the collection of disease activity-related data in the UK or the feasibility of disease activity assessment tools in routine clinical practice. This audit of current practice aims to benchmark assessment and documentation of disease activity across the UK. It will inform ongoing work towards deriving consensus around a standardized measure of disease activity for JIA. Methods: A literature review of disease activity assessment tools informed an initial consultation process with the JIA Topic Specific Group. A range of disease activity assessment tools was identified for inclusion in the audit. 14 UK Paediatric Rheumatology centres were invited to participate. The audit tool included a retrospective case notes review of 15 patients using a pre-tested proforma derived from the consultation process, and a more detailed centre review.

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Available abstract

Background: The assessment of disease activity is a key outcome in JIA, of interest to clinicians, researchers and commissioners. A standardized measure of disease activity would allow comparison between centres and clinical trial results, and enable outcome-based commissioning of services. However, disease activity is difficult to define and measure in this heterogeneous, multidimensional group of conditions with no national consensus. Little is known about the collection of disease activity-related data in the UK or the feasibility of disease activity assessment tools in routine clinical practice. This audit of current practice aims to benchmark assessment and documentation of disease activity across the UK. It will inform ongoing work towards deriving consensus around a standardized measure of disease activity for JIA. Methods: A literature review of disease activity assessment tools informed an initial consultation process with the JIA Topic Specific Group. A range of disease activity assessment tools was identified for inclusion in the audit. 14 UK Paediatric Rheumatology centres were invited to participate. The audit tool included a retrospective case notes review of 15 patients using a pre-tested proforma derived from the consultation process, and a more detailed centre review.

Key concepts: Medicine, Juvenile, Arthritis, Audit, Disease, Physical therapy, Internal medicine, Management

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